Tuesday, May 13, 2014

The Marshall Protocol (Chasing the Cure) Part 3

I forgot to mention something very important in part 2 so this is a continuation of part 2 and then I will get to part 3.  The websites that purport to show the independent research are all run by Doctor Marshall, one of the groups that Doctor Marshall is the head of or a consultant to, and then finally patient advocacy blogs that are closely tied to Doctor Marshall.  The websites are not really independent and I should have made that clear, the studies they quote are often independent but the people doing the quoting are always either Doctor Marshall or someone affiliated with him, not my idea of independent.

Now that I have gotten that out of the way some other stuff.  (I am thinking I should let myself ramble more...also because when I asked if the shorter format was preferred to the long rambling format the answer was a resounding no)

Now the other thing I want to bring up about the Marshall Protocol is there constant quoting of themselves.  What I mean by that is there are several websites that contain very technical explanations of Doctors Marshall's theory of the disease operation of sarcoidosis (and more diseases as time goes on) and these websites will often say if you would like more information go to a different website.  That second website they want you to go to is also run by either Doctor Marshall, one of his corporations, or is affiliated with him in some other way.

Now I know this sounds like I am repeating myself but there is a difference.  The difference being you can have multiple websites for the same corporation, usually it is for an SEO technique called farming which I have personally done at a company I worked for.  You get like ten different websites that all are your corporation, each one of the ten represents a different landing page (different key word or search that has brought you to that website) and then they all link to your main page and main page links to all the "Farm" websites.  Google at one point gave a website a higher rank dependent on how many websites were linked to it and weighted each link by how highly ranked the linking website was.  I do not know how Google has changed there algorithm over time and I am not sure this is still the case but I bet it is in one way or the other.

I just reread that last paragraph and I apologize for the dated lecture on website SEO.  I know this whole series has been kind of dry but this is going to be the last post on Marshall Protocol barring some unforeseen event.

In the case of "Doctor" Marshall and his collection of affiliated websites it is not just that they do not mention that they are affiliated (sometimes run not just by affiliated organizations but even the same organization) it is that they will reference each other as an independent source to verify their theories and their treatments.  Now that is a lot of words there and I am not sure that I was clear so clarity hopefully will follow here: Website one will say something along the lines of sarcoidosis is caused by bacteria that do not have cell walls and they will direct you to website two.  In the direction to website two they will intimate that it is an independent source that has come to the exact same conclusion that sarcoidosis is caused by bacteria sans cell walls.

In other words they say hey look at these guys they agree with us and have come to the exact same conclusions as us and the only problem with that is they are all the same people.  In my opinion it is fraud to plead to authority to another website when you run the other website or someone directly affiliated with you runs that other website.

I started this series of posts based on a friend I made on Facebook.  He has a strong desire to find a cure for sarcoidosis, specifically his but I am sure he would be really happy if he found a cure for everyone with sarcoidosis.  He has been speaking with a lot of other people with sarcoidosis that also have a strong desire to find a cure sarcoidosis.  There is only one person that is offering to cure everyone with sarcoidosis, that person is Trevor Marshall.  No other person or group studying sarcoidosis says they are anywhere close to a cure.

The general consensus in the community of sarcoidosis researchers is that sarcoidosis is many different diseases that can not currently be distinguish from each other.   That does not phase the people pushing the Marshall Protocol, all though it should phase anyone looking at it objectively.  Think about it, at one time science could not distinguish between Valley Fever and Tuberculosis.  One is a bacteria and one is a fungus, the treatments are very different and here comes the punch line, in the past there were times when people could not tell the difference between Valley Fever, Tuberculosis and Sarcoidosis.  People with Valley Fever are still occasionally misdiagnosed with sarcoidosis.

It is hard to take a step back when you are suffering, when you can't breath, when the pain makes you vomit and the drugs literally drive you mad it is hard to take a step back but I would encourage everyone to just take a beat, a moment and just take a step back and think.  Whether you are an atheist or you believe in God this life we have in finite.  When I talk to people they often say what is the harm in trying the Marshall Protocol, in my opinion the harm is wasting the precious time we have to live.

People argue about Trevor Marshall's motives, whether he is a con artist or a true believer and to me that is irrelevant.  I would not waste my time on a protocol for treating a disease that for the most part is based on computer models.  Computer models have a value, more so in electrical engineering than medicine but either way you have to let go of the computer model and try it in real life so to speak and do a stringent, controlled, peer reviewed study on what your computer modes show.  He has had plenty of time to do that and he has not.  He has a lot of websites but no peer reviewed study, I do not like his priorities.


The same day I posted part 1 of this serious I ran across the following news story:

http://www.wrdw.com/home/headlines/News-12-Special-Assignment-Sarcoidosis-The-struggle-to-survive-257147141.html

You will notice or maybe you will not notice but what I noticed is the reporter does not follow up with any substantive information from a doctor and does not present the viewer with a reputable source to get information from like the Cleveland Clinic Sarcoidosis Center of Excellence.  I am not making up the name and they do have a great website and they are the world leaders in the treatment of sarcoidosis.  You will notice that on the Cleveland Clinic website the Marshall Protocol is never mentioned and they don't talk about computer models a whole lot either.

http://my.clevelandclinic.org/lungs-breathing-allergy/departments-centers/sarcoidosis-center.aspx